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Defect/Syndrome Specific Sites


      Information and Diagram      United Patients Association for Pulmonary Hypertension
Arrhythmias
Information
     Indications for Anticoagulation in Atrial Fibrillation
     Atrial Fibrillation 
     Diagnosing Arrhythmia
     Explaining Arrhythmia
     Glossary of Terms
     Patient Education - NASPE (Information about specific types of arrhythmia)
     Directory of Pediatric Electrophysiologists
     Radio Frequency Ablation
Organizations
     Cardiac Arrhythmias Research and Education Foundation, Inc.
     SADS Foundation
     Directory of Pediatric Electrophysiologists
Absent Pulmonary Valve
Information and Diagrams
 
Anomalous Origin of the Left Coronary Artery (ALCAPA)
Information
Description
     Diagram and Information
Aortic Valve Stenosis 
Information
     Signs, Symptoms, Diagnosis, Treatments, Outcomes
Aortopulmonary Window
Information
     Diagram and brief description
Atrial Septal Defect (ASD)
Information
     Atrial Septal Defect: Surgical and Transcatheter Management
     Atrial Septal Defect (information, diagrams, treatment, flash movies) 
     Diagram: Atrial Septal Defect Primum
     Diagram: Atrial Septal Defect, Secundum
 
Atrioventricular Canal Defect (AVSD)
Information
Diagram
     Diagram: Royal Children's Hospital
     Treatment: Heart Center Encyclopedia
Barth Syndrome
Information and Support
     Barth Syndrome Foundation
Bicuspid Aortic Valve
          Info/Diagrams 
 
Cardiomyopathy
Information
     Facts About Cardiomyopathy (NHLBI)
     Dilated Cardiomyopathy
     Hypertrophic Cardiomyopathy
     Idiopathic Cardiomyopathy
     Understanding Pediatric Cardiomyopathy
Organizations
     Hypertrophic Cardiomyopathy Association
     The Cardiomyopathy Association
Charge Syndrome
Information and Support
CHARGE Syndrome Foundation Inc.
Coarctation of the Aorta (COA)
Information
  Diagrams, Diagnosis and Treatment: University of Michigan Congenital Heart Center
Congenitally Corrected Transposition of the Great Arteries (CCTGA/L-TGA)
Information    
Diagrams and Information: Mayo Clinic
Cor Triatrium
Medical Information
Cornelia de Lange Syndrome
     FAQ's 
Criss Cross Heart
  Diagram and Information
DiGeorge Syndrome
Information
     What is DiGeorge Syndrome?
Double Aortic Arch
Information 
     Vanderbilt Pediatric Interactive Digital Library
Double Inlet Left Ventricle
   Diagram and Information
Down Syndrome
Information 
     Down Syndrome: Health Issues
     Health Care Guidelines For Individuals With Down Syndrome
Support
     Organizations Worldwide
     National Association for Down Syndrome (U.S.)
Ebstein's Anomaly
Information
     Information and Treatment: MayoClinic
     Diagram and Information: Heart Center Encyclopedia
Eisenmenger's Syndrome
Information
     Information and Treatment: Mayo Clinic
 
Endocardial Fibroelastosis
Information
     What is EFE?
Heart Murmurs
Information
     Heart Murmurs and Your Child
     What is a Heart Murmur?
Hypertrophic Cardiomyopathy
Information
     Hypertrophic Cardiomyopathy
Support
     Hypertrophic Cardiomyopathy Association
     The Cardiomyopathy Association
Hypoplastic Left Heart Syndrome (HLHS)
Information
     Diagrams, Information and Treatment: University of Michigan Congenital Heart Center
     Fontan: University of Michigan Congenital Heart Center
.....Animated Graphics of Surgical Procedures: Cincinnati Children's Hospital
     Fenestration closure: University of Michigan Congenital Heart Center
Support
     Online Support Group: C.H.I.N.
     Left Heart Matters
Hypoplastic Right Heart Syndrome
Information
      Diagram
Interrupted Aortic Arch
         Diagram and treatment
Kawasaki Disease
Information
     Causes, symptoms, diagnosis and treatment: Lucille Packard Children's Hospital
     Kawasaki Disease: A Parent's Guide
Support
     Kawasaki Disease Foundation
Long QT Syndrome
Information
     Brief overview: University of Chicago Children's Hospital
     Long QT Syndrome
Support and Research
     Cardiac Arrhythmias Research and Education Foundation, Inc.
     SADS Foundation (U.S.)
     The Canadian SADS Foundation
Marfan Syndrome
Information
     Cardiac Concerns
     An Overview of Related Disorders
     What is the Marfan Syndrome? (AHA)
Organizations
     The Canadian Marfan Association
     Marfan Association U.K.
     National Marfan Foundation (U.S.)
Noonan Syndrome
Information
     Fact Sheet
     Booklet (PDF File)
Support
     Noonan Syndrome Support Group
 
Patent Ductus Arteriosus (PDA)
     Patent Ductus Arteriosus: A Parent's Guide
Diagram
 
Patent Foramen Ovale
Pulmonary Atresia
     Diagrams and Treatment
Pulmonary Stenosis
         Diagnosis and Treatment
 
Pulmonary Hypertension 
Information
     Diagnosis and Treatment
    What Is Pulmonary Hypertension?
     Consensus statements: Pulmonary Hypertension Association
     Pulmonary Hypertension: Medline Plus
Organizations
     PHCentral 
     Pulmonary Hypertension Association (U.S.)
     Pulmonary Hypertension Association (U.K.)
 
Rubenstein-Taybi Syndrome
Information
     Book For Families
Support
     Rubenstein-Taybi
     RTS Canada
     RTS Support Group (U.K.)
Shone Syndrome
Diagram
 
Stroke
Organizations
     Pediatric Stroke Network
     Children's Hemiplegia and Stroke Association
Tetralogy of Fallot (TOF)
Information
     Diagram, Diagnosis and Treatment 
     Diagram: TOF Repaired
 
Total Anomalous Pulmonary Venous Return (TAPVR)
Information
Diagram
     Explanation, Diagnosis and Treatment
Transposition of the Great Arteries (TGA)
    Arterial Switch operation
Tricuspid Atresia
    Information, Diagrams and Treatment
Truncus Arteriosus (TA)
Information
     Diagrams, Diagnosis and Treatment
     Surgical Repair
Turner's Syndrome
Information
     Clinical Feature of TS
     Endocrinology and Turner's Syndrome
FAQ
Support
     The Turner's Syndrome Society of the United States
     Turner's Syndrome Society (Canada)
     The Magic Foundation
Transposition of the Great Arteries  (TGA, D-TGA)
Information
     Diagrams, Diagnosis and Treatment
Vascular Ring
        Diagram and treatment
Ventricular Septal Defect (VSD)
Information
     Diagrams, Diagnosis and Treatment
 
VCFS
Information
     Congenital Heart Information Network
     Frequently Asked Questions about VCFS
Support
     Velo-Cardio-Facial Syndrome Educational Foundation
 
Williams Syndrome
Information
     Medical Guidelines
Support
     The Williams Syndrome Foundation Home Page
     Williams Syndrome Association

 

 

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